Genomic data is permanent. It is treated that way.
This page states the principles Aevum is building to. A full privacy notice will replace it following legal review.
What we intend to collect
Contact details you provide, health and family history you choose to share, medical results and wearable data you add, and genomic and methylation measurements made for the programme or imported by you.
Why we process it
The intended purpose is to produce and update your report and operate the service around it. Optional secondary uses would require separate consent.
Research and secondary use
We do not treat participation in the service as consent to research use, data sharing or commercialisation. Any such use would be presented separately, described plainly, and would be optional.
Storage and access
Before accepting genomic or medical data, Aevum will publish its storage locations, security arrangements, access controls and provider details in a formal notice.
Your controls
The formal notice will explain how to request access, correction, export, withdrawal of optional consent and deletion, including any legal retention limits.
Third parties
Any laboratories and infrastructure providers involved will be identified in the formal notice, with their roles and terms made clear before data is collected. Selling personal data is not part of the intended model.
Retention
Retention periods and deletion procedures will be set out in the formal privacy notice before the service collects sensitive data.
Placeholder for subsequent legal review. Not yet a binding privacy notice.